About Us

Donate Now

About Us

The Oxalosis and Hyperoxaluria Foundation (OHF) is the leading organization in the world dedicated to the awareness, understanding and treatment of Primary Hyperoxaluria, Oxalosis and related Hyperoxaluria Kidney Stone Conditions for thousands of healthcare professionals, patients and their families.  We aim to share our knowledge so that everyone – patients, medical professionals, government officials, the general public and industry has accurate information about the advances in our disease.

Our goal is to create brighter tomorrows for those impacted by Primary Hyperoxaluria, Oxalosis and related Hyperoxaluria Kidney Stone Diseases.

OHF strives to use what we learn through our own research and outside sources to create forums for rich clinical and scientific discussion, covering the most current topics about our disease so that we can provide better outcomes for patients around the globe.

Executive Leadership

Kim Hollander, Executive Director
New York, New York
Julie Bertarelli, Operations Coordinator
St. Louis, Missouri

Board Of Directors

Brett Rosen, Chair
New York, New York
Don Ashkenase, Treasurer
Great Neck, New York
Brendan McGovern, President
New Hyde Park, New York
Lisa Berra, Secretary
St. Louis, Missouri
Tim Berra, Vice President
St. Louis, Missouri
Bernd Hoppe, MD, Director
Bonn, Germany
William C. Tidmore, Jr., MD, Director
Valdosta, Georgia
Debra Wattenberg, MD, VP of Science and Medical Affairs
New York, New York

Scientific Advisory Board

The Scientific Advisory Board (SAB) provides advice, as well as medical and scientific expertise to the OHF on an ongoing basis. The SAB is regularly informed of the progress of OHF research and development projects and provides feedback and ideas intended to accelerate medical breakthroughs. The SAB also fulfills the role of external advisors involved in project-specific reviews and enhances the OHF’s innovation process by providing support to hyperoxaluria community. Members of the SAB volunteer their time, individual knowledge and expertise to help broaden the scope, content, health and balance of related issues.

John C. Lieske, MD, Chair
Mayo Clinic
Rochester, Minnesota
David Goldfarb, MD
NYU Langone Medical Center
New York, New York
W. Todd Lowther, PhD, Vice Chair
Wake Forest School of Medicine
Winston-Salem, North Carolina
Yaacov Frishberg, MD
Shaare Zedek Medical Center
Jerusalem, Israel
Michelle Baum, MD
Boston Children’s Hospital
Boston, Massachusetts
Sally Hulton, MD
Birmingham Children’s Hospital
Birmingham, United Kingdom
Bodo Beck, MD
University of Cologne
Cologne, Germany
John Knight, PhD
University of Alabama School of Medicine
Birmingham, Alabama
Barbara Cellini, PhD
University of Perugia
Perugia, Italy
Eduardo Salido MD, PhD
Hospital Universitario Canaria, University La Laguna
Tenerife, Spain

Scientific Advisory Council

The Scientific Advisory Council (SAC), comprised of specialists and experts in related fields, provides independent advice as needed to the Scientific Advisory Board (SAB) on matters of concern in Primary Hyperoxaluria. The SAC may also review the Foundation’s research portfolio and identify promising new areas of research.

John Asplin, MD
Litholink Corporation
Chicago, Illinois
Amy Krambeck, PhD
Mayo Clinic
Rochester, Minnesota
Dean G. Assimos, MD
University of Alabama School of Medicine
Birmingham, Alabama
Kay Latta, MD
Clementine-Kinderhospital
Frankfurt, Germany
Ruth Belostotsky, Ph.D.
Shaare Zedek Medical Center
Jerusalem, Israel
Naim Maalouf, M.D.
University of Texas Southwestern Medical Center
Dallas, TX
Nicola Brunetti-Pierri, MD
University of Naples
Naples, Italy
Robert B. Miller, MD
Presbyterian Hospital
Albuquerque, New Mexico
Benjamin K. Canales, MD MPH
University of Florida
Gainesville, Florida
 Dawn Milliner, MD
Mayo Clinic
Rochester, Minnesota
Pierre Cochat, MD
Hôpital Femme Mère Enfant, Université Lyon
Lyon, France
Helen O’Connor, MS, RD, CCRP
Mayo Clinic
Rochester, Minnesota
Scott Cramer, PhD
University of Colorado School of Medicine
Aurora, Colorado
Elisa Oppici, PhD
University of Verona
Verona, Italy
Christopher Danpure, PhD
University College London
London, United Kingdom
Angel Pey, Ph.D.
University of Granada
Granada, Spain
Mario De Marchi, MD
University of Torino
Torino, Italy
Edward Purdue, PhD
Mount Sinai School of Medicine
New York, New York
Monica Diaz-Gavilan, PhD
University of Granada
Granada, Spain
Michael Romero, PhD
Mayo Clinic
Rochester, Minnesota
Sonia Fargue, PhD
University of Alabama
Birmingham, Alabama
Jayanta Roy-Chowdhury, M.D.
Albert Einstein College of Medicine
Bronx, NY
Jaap Groothof, MD
Emma Children’s Hospital
Amsterdam, Netherlands
Namita Roy-Chowdhury PhD
Albert Einstein College of Medicine
Bronx, New York
Hatim Hassan, MD
University of Chicago
Chicago, Illinois
Gill Rumsby, PhD, FRC
University College London
London, United Kingdom
Marguerite Hatch, PhD
University of Florida
Gainesville, Florida
Eduardo Salido, MD, PhD
University Laguna
Tenerife, Spain
John Herrin, MD
Children’s Hospital Boston
Boston, Massachusetts
Jose Sanchez-Ruiz
University of Granada
Granada, Spain
Ross Holmes, PhD
University of Alabama School of Medicine
Birmingham, AL
Davis Sas, D.O.
Mayo Clinic
Rochester, MN
Markus J. Kemper
Universitäts-Klinikum Hamburg Eppendorf
Hamburg, Germany
Chandra Tucker, PhD
University of Colorado School of Medicine
Aurora, Colorado
Saeed Khan, PhD
University of Florida
Gainesville, Florida
Carla Voltattorni, PhD
University of Verona
Verona, Italy
Robert Kleta, MD
Royal Free Hospital
London, United Kingdom
Emma Walker, PhD
University College London
London, England
Hari K Koul, MSc, PhD, FACN, FASN
LSU Health Shreveport
Shreveport, Louisiana
Elaine Worcester, M.D.
University of Chicago
Chicago, Il

Patient Voice Panel

The Patient Voice Panel is comprised of patients, parents, family members, caregivers and is facilitated by members of the OHF staff. The role of the Patient Voice Panel is to support OHF’s mission by providing valuable input to work with OHF and industry partners to expand research, education, programs and advocacy. The group helps OHF better understand the needs of patients and families while improving the culture within the Hyperoxaluria community. The Patient Voice Panel works directly with OHF staff expanding outreach while raising awareness in local communities.

If you would like to make an impact, please contact Julie Bertarelli at julieb@ohf.org.