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DTSTART;TZID=America/New_York:20220311T120000
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DTSTAMP:20260419T050325
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SUMMARY:What’s Causing My Kidney Stones?
DESCRIPTION:Kidney stones are common — if you haven’t had a kidney stone\, you likely know someone who has. Hyperoxaluria\, kidney stones in children and multiple kidneys stones as an adult are not. Learn from two OHF key opinion leaders about causes\, symptoms\, diagnosis and when to take a more in depth look. \nClick to Register \nSpeakers: \nLama Nazzal\, M.D.\nAssistant Professor\nNYU Langone Health\, New York \nKyle Wood\, M.D.\nAssistant Professor\nDepartment of Urology\, University of Alabama\, Birmingham
URL:https://ohf.org/event/whats-causing-my-kidney-stones/
LOCATION:TN
CATEGORIES:Virtual
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220303T120000
DTEND;TZID=America/New_York:20220303T130000
DTSTAMP:20260419T050325
CREATED:20220208T194104Z
LAST-MODIFIED:20220223T230643Z
UID:483-1646308800-1646312400@ohf.org
SUMMARY:Harnessing the Power to Make a Difference!
DESCRIPTION:Hear stories from others in the rare disease space who despite their diagnosis recognized that they could make a difference. No one is more motivated than you to drive progress against your disease. Learn how to make a change and breakdown barriers. You can take the next step! \nClick to Register \nSpeakers: \nAnthony DeVergillo\nInclusive Digital Communicator\nOur Odyssey Board Member \nRob Long\nUplifting Athletes\nExecutive Director
URL:https://ohf.org/event/harnessing-the-power-to-make-a-difference/
LOCATION:TN
CATEGORIES:Virtual
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20220228
DTEND;VALUE=DATE:20220301
DTSTAMP:20260419T050325
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UID:385-1646006400-1646092799@ohf.org
SUMMARY:World Rare Disease Day
DESCRIPTION:This February 28 is Rare Disease Day. With so many things going on in the world around us\, it’s very easy to put off important things like health…
URL:https://ohf.org/event/world-rare-disease-day/
LOCATION:TN
CATEGORIES:Virtual
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220226T120000
DTEND;TZID=America/New_York:20220226T130000
DTSTAMP:20260419T050325
CREATED:20220208T193637Z
LAST-MODIFIED:20220223T193821Z
UID:482-1645876800-1645880400@ohf.org
SUMMARY:Emotional Wellbeing
DESCRIPTION:Living with a chronic condition places a daily emotional strain on both patients and caregivers\, not to mention the newly added stress of a pandemic. Join us as we step throughs ways to recognize the signs and symptoms and learn ways to find balance in managing emotional health and wellness. \nClick to Register \nSpeakers: \nKristi Ouimet\nOHF Patient Advisory Board Member \nMaya Doyle\, MSW\, PhD\, LCSW-R\nAssociate Professor\nSchool of Health Sciences/Department of Social Work\nQuinnipiac University\, Hamden CT
URL:https://ohf.org/event/emotional-wellbeing/
LOCATION:TN
CATEGORIES:Virtual
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