Things really hit home this past year when I found out about the passing of my friend Eric who had Primary Hyperoxaluria, the same genetic disease my twin sons suffer from. My sons, Jackson and Harrison had the honor of meeting Eric a few times and he was always upbeat and giving my boys great advice, “to make sure to drink lots”. His sister Beth who also suffers from Primary Hyperoxaluria has been one of my go to people since I found out that Jackson and Harrison had the disease as well. She has also been my running warrior in the fight against Primary Hyperoxaluria and always up to doing a fundraiser run with me and has given me hope that my sons would be able to run a half marathon with us in the future.
More about Eric since he is the focus of our run this year. I am going to use Beth’s words since she knows him best and summed it up so nicely. “Eric was a true Renaissance Man – a firefighter, water rescue diver, photographer, and astronomer. But most important, he was a wonderful brother and friend to all – quietly reaching out and supporting others in need. Eric bravely fought a long battle with PH-1, and survived eleven years after a kidney and liver transplant.
We want to honor his spirit by forming Team Orion to run in his memory and raise funds for the OHF to help it continue to battle Primary Hyperoxaluria. Team members will run one or all legs of the 2018 Boston Athletic Association Distance Medley – the B.A.A. 5K on April 14th, the Boston 10K on June 24th, and the Boston Half Marathon in October. Please help Team Orion with a contribution to fight the deadly disease that Eric fought so bravely.”
Please support me by donating to OHF in honor of my late friend Eric Harrison, my sons Jackson and Harrison, and all other Primary Hyperoxaluria suffers. So many promising things are on the horizon right now for their future!
Please help us reach our goal – Donate TODAY!
We are forever grateful,
Mom and Friend