The EveryLife Foundation for Rare Diseases is excited to offer the return of the YARR Leadership Academy, a series of on-line courses offered to a select group of young adults in the rare disease community (ages 18-30). Academy students will learn about the roles and opportunities for patient representation in policy-making, drug development, and the regulatory process and the steps it takes to get there.

YARR Leadership Academy provides a clear pathway for the next generation of young adults who are ready to be leaders in the rare disease community. Patient perspective is vital in closing the innovation gap and ensuring patients have access to safe and effective treatments. Representation matters. To learn more about the YARR Leadership Academy and review the full class schedule, please click here.