Virtual
Calendar of Events
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Emotional Wellbeing
Emotional Wellbeing
Living with a chronic condition places a daily emotional strain on both patients and caregivers, not to mention the newly added stress of a pandemic. Join us as we step throughs ways to recognize the signs and symptoms and learn ways to find balance in managing emotional health and wellness. Click to Register Speakers: Kristi […]
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World Rare Disease Day
This February 28 is Rare Disease Day. With so many things going on in the world around us, it’s very easy to put off important things like health...
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Harnessing the Power to Make a Difference!
Harnessing the Power to Make a Difference!
Hear stories from others in the rare disease space who despite their diagnosis recognized that they could make a difference. No one is more motivated than you to drive progress against your disease. Learn how to make a change and breakdown barriers. You can take the next step! Click to Register Speakers: Anthony DeVergillo Inclusive […]