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OHF

OHF

Oxalosis & Hyperoxaluria Foundation

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Our Vision… A World Without Hyperoxaluria

Don’t miss the 2023 Patient & Family Summit

Dedicated to improving the daily lives of people with hyperoxaluria. We have a single, urgent goal: eradicating all forms of hyperoxaluria disease forever.

Learn More about the OHF

Understanding Hyperoxaluria

Hyper

(too much)

oxal

(oxalate)

uria

(in the urine)

Hyperoxaluria can be caused by a genetic disorder, eating too many oxalate-rich foods or an intestinal disease. In some people the cause of the disease is not known but may result from changes in the way kidneys handle normal amounts of oxalate. Early diagnosis and treatment are important to the long-term health of your kidneys.

Learn More About Understanding Hyperoxaluria

Living with Hyperoxaluria

Being diagnosed with hyperoxaluria can be overwhelming. Chance are you’ve never heard about hyperoxaluria or what this means in terms of your future. Dealing with a rare disease can be scary but knowledge is power. You are not alone, we will face hyperoxaluria together.

Learn More About Daily Management

Our Impact

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Please visit our OHF Grants Funded page to explore the impact of these initiatives and this research. 

Our Impact

Please visit our OHF Grants Funded page to explore the impact of these initiatives and this research. 

Get Involved

Discover the many ways you can bring optimism to the hyperoxaluria community and create more awareness in yours. Be part of the solution and drive change for the future.

Join our fight and end hyperoxaluria forever!

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Upcoming Events

Our events page is designed to help you stay up to date on the latest research breakthroughs, important events, and personal stories that affect the oxalosis and hyperoxaluria community.

View Our Upcoming Events

Driving Research to Make a Difference

Learn More About Research

The path to end hyperoxaluria is a challenging one that requires a progressive research agenda to accelerate treatments and drug development. As the world’s largest private funder of hyperoxaluria research, OHF is dedicated to providing hope, energizing science, and helping save lives around the world.

About Us

OHF is a small, but mighty organization fighting globally to end hyperoxaluria forever. We tackle major barriers so that patients living with hyperoxaluria have brighter tomorrows. OHF puts patient first, working tirelessly to accelerate research, improve access and quality of care and empower those living with hyperoxaluria. We won’t stop until the cure is found.

Learn More About Our Team Contact Us

ohfoundation

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Explore the agenda for the 14th International Hype Explore the agenda for the 14th International Hyperoxaluria Workshop! Visit https://bit.ly/ohf_workshop to learn more! 

This workshop will be the largest professional event for members of leading clinical, research, and industry teams in hyperoxaluria, who will convene to explore clinical advances, cultural trends, and current research outcomes that will inform future critical research and development.  Above all, speakers, presenters and attendees are working together to improve care for those facing the challenges of hyperoxaluria diseases.
OHF is a partner, an alliance and a movement. We OHF is a partner, an alliance and a movement. 

We bring together people living with hyperoxaluria, families, care partners,  scientists, doctors, advocates, donors and volunteers to join forces to improve lives and advance towards a cure.

If you or a loved one has been diagnosed with hyperoxaluria, please visit our website to find resources, links, and valuable information.
Happy Mothers Day from all of us at the OHF! Happy Mothers Day from all of us at the OHF!
When you or a loved one is diagnosed with Primary When you or a loved one is diagnosed with Primary Hyperoxaluria (PH) or Enteric Hyperoxaluria (EH), the shockwaves that follow can disrupt life, work and relationships. 

You probably feel overwhelmed but we promise the Oxalosis and Hyperoxaluria Foundation (OHF) is here for you! Find invaluable resources on our website!
The PH1 of Kind video series is an incredible reso The PH1 of Kind video series is an incredible resource. Meet Isabelle, Luuk, Asha, and Will — kids from around the world who have been diagnosed with Primary Hyperoxaluria Type 1, as they experience a range of situations and cope with emotions as a result of their condition.

These videos bring kids into a world with imaginary and creative friends who are talking about all the things they are going through in a very fun and entertaining way. It reduces the isolation that kids might feel and gives them tools to communicate with their friends and family!
Dealing with a rare disease can be scary, but know Dealing with a rare disease can be scary, but knowledge is power! 

You are not alone. You probably feel overwhelmed, but we promise the Oxalosis and Hyperoxaluria Foundation (OHF) is here for you.

We will face hyperoxaluria together.

https://ohf.org/
Save the Date! The OHF On the Road Family Summit i Save the Date!
The OHF On the Road Family Summit is coming!

Where: Twin Cities / Minnesota
When: October 7, 2023

More info to come!
Your Journey. Your Future. Your Registry The OHF Your Journey. Your Future. Your Registry

The OHF Patient Registry collects information on the health status of people with hyperoxaluria. This information is used to create care guidelines, assist care teams providing care to individuals with hyperoxaluria, and guide quality improvement initiatives at care centers. 

Researchers also use the Patient Registry to develop new treatments and design clinical trials!

Click to learn more and join today!

https://ohf.org/research/#drug-development
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  • Community Summit
  • Understanding Hyperoxaluria
    • What is Hyperoxaluria?
    • About Hyperoxaluria
    • Primary Hyperoxaluria
      • Symptoms
      • The Role of Genetics
      • Prevalence
    • Enteric Hyperoxaluria
      • Symptoms
      • Enteric Hyperoxaluria FAQs
      • Prevalence
    • Treatment Options
  • Living with Hyperoxaluria
  • Research
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    • OHF Grants Funded
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