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OHF

OHF

Oxalosis & Hyperoxaluria Foundation

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    • What is Hyperoxaluria?
    • Types of Hyperoxaluria
    • Causes of Primary Hyperoxaluria
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Our Vision… A World Without Hyperoxaluria

Dedicated to improving the daily lives of people with hyperoxaluria. We have a single, urgent goal: eradicating all forms of hyperoxaluria disease forever.

Learn More about the OHF

Understanding Hyperoxaluria

Hyper

(too much)

oxal

(oxalate)

uria

(in the urine)

Hyperoxaluria can be caused by a genetic disorder, eating too many oxalate-rich foods or an intestinal disease. In some people the cause of the disease is not known but may result from changes in the way kidneys handle normal amounts of oxalate. Early diagnosis and treatment are important to the long-term health of your kidneys.

Learn More About Understanding Hyperoxaluria

Living with Hyperoxaluria

Being diagnosed with hyperoxaluria can be overwhelming. Chance are youโ€™ve never heard about hyperoxaluria or what this means in terms of your future. Dealing with a rare disease can be scary but knowledge is power. You are not alone, we will face hyperoxaluria together.

Learn More About Daily Management

Our Impact

Get Involved

Discover the many ways you can bring optimism to the hyperoxaluria community and create more awareness in yours. Be part of the solution and drive change for the future.

Join our fight and end hyperoxaluria forever!

Learn How To Get InvolvedDonate

Upcoming Events

Our events page is designed to help you stay up to date on the latest research breakthroughs, important events, and personal stories that affect the oxalosis and hyperoxaluria community.

View Our Upcoming Events

Driving Research to Make a Difference

Learn More About Research

The path to end hyperoxaluria is a challenging one that requires a progressive research agenda to accelerate treatments and drug development. As the worldโ€™s largest private funder of hyperoxaluria research, OHF is dedicated to providing hope, energizing science, and helping save lives around the world.

About Us

OHF is a small, but mighty organization fighting globally to end hyperoxaluria forever. We tackle major barriers so that patients living with hyperoxaluria have brighter tomorrows. OHF puts patient first, working tirelessly to accelerate research, improve access and quality of care and empower those living with hyperoxaluria. We wonโ€™t stop until the cure is found.

Learn More About Our Team Contact Us

By Joining the OHF Patient Registry ๐Ÿ’™ You Can By Joining the OHF Patient Registry

 ๐Ÿ’™ You Can Transform the Way New Treatments are Developed and Tested, 
 ๐Ÿ’™ Help Accelerate Breakthroughs in Treatment
 ๐Ÿ’™ Together, We Can End Hyperoxaluria!

If you haven't already, please take a few moments to join!

https://ohf.org/research/#patient-registry
Professionals!!!! Early bird registration ends Apr Professionals!!!! Early bird registration ends April 1st!

Don't miss the 14th International Hyperoxaluria Workshop! Visit https://ohf.org/14th_international_workshop/ to REGISTER today! 

When: June 23-24, 2023
Where: Sala dei Notari, Perugia, Italy
Who: Clinicians, Researchers, Industry (This is a professional event only)

This workshop will be the largest professional event for members of leading clinical, research, and industry teams in hyperoxaluria, who will convene to explore clinical advances, cultural trends, and current research outcomes that will inform future critical research and development.  Above all, we will work together to improve care for those facing the challenges of hyperoxaluria diseases.

Supported by the Oxalosis & Hyperoxaluria Foundation (OHF)!
Information on the #RAREis Scholarship Fund! Appl Information on the #RAREis Scholarship Fund!

Applications are open TODAY through April 13th at RareScholarship.org!
Thank YOU to the OHF Community! Canada's Health a Thank YOU to the OHF Community!

Canada's Health and Drug Technology Agency (CADTH) recommends that Oxlumo be reimbursed by public drug plans for the treatment of Primary Hyperoxaluria Type 1 (PH1) to lower urinary oxalate levels in pediatric and adult patients.

The approval of Oxlumo in Canada represents a great triumph of community involvement to address patients with PH1! ๐Ÿ‡จ๐Ÿ‡ฆ

It is a direct result of input from patients around the globe, treating physicians, experts together with the Oxalosis and Hyperoxaluria Foundation (OHF) who made this dream a reality!
Your feedback plays a vital role in improving qual Your feedback plays a vital role in improving quality of care for all! ๐Ÿ˜Š
 
We know there is survey burnout, but it is one of the most important ways that you can share your voice in just 5 minutes!
 
One of the most important ways that the OHF is working to understand hyperoxaluria, improve care, and develop treatments is through the PH registry. Take the quick survey here to voice what you value in improvements in care and treatment!

https://ohf.org/ph-registry/
As we reflect on another incredible rare disease d As we reflect on another incredible rare disease day, we are grateful to those who are using their voice to spread awareness and change the future of hyperoxaluria. Visit ohf.org/get-involved/ to learn more about spreading awareness or monthly fundraising join to fight to find a cure!
Rare Disease Day is the globally-coordinated movem Rare Disease Day is the globally-coordinated movement working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease like hyperoxaluria. Visit www.rarediseaseday.org to learn more about this incredible movement!
Today is Rare Disease Day 2023! Visit www.raredise Today is Rare Disease Day 2023! Visit www.rarediseaseday.org/downloads/ to download cover photos, profile frames and other social media resources to help you use your voice and share your rare!!!
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