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OHF

OHF

Oxalosis & Hyperoxaluria Foundation

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  • Understanding Hyperoxaluria
    • What is Hyperoxaluria?
    • Types of Hyperoxaluria
    • Causes of Primary Hyperoxaluria
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  • Living with Hyperoxaluria
    • Daily Management
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      • Young Executive Leadership Program
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Our Vision… A World Without Hyperoxaluria

Dedicated to improving the daily lives of people with hyperoxaluria. We have a single, urgent goal: eradicating all forms of hyperoxaluria disease forever.

Learn More about the OHF

Understanding Hyperoxaluria

Hyper

(too much)

oxal

(oxalate)

uria

(in the urine)

Hyperoxaluria can be caused by a genetic disorder, eating too many oxalate-rich foods or an intestinal disease. In some people the cause of the disease is not known but may result from changes in the way kidneys handle normal amounts of oxalate. Early diagnosis and treatment are important to the long-term health of your kidneys.

Learn More About Understanding Hyperoxaluria

Living with Hyperoxaluria

Being diagnosed with hyperoxaluria can be overwhelming. Chance are you’ve never heard about hyperoxaluria or what this means in terms of your future. Dealing with a rare disease can be scary but knowledge is power. You are not alone, we will face hyperoxaluria together.

Learn More About Daily Management

Our Impact

Get Involved

Discover the many ways you can bring optimism to the hyperoxaluria community and create more awareness in yours. Be part of the solution and drive change for the future.

Join our fight and end hyperoxaluria forever!

Learn How To Get InvolvedDonate

Upcoming Events

Our events page is designed to help you stay up to date on the latest research breakthroughs, important events, and personal stories that affect the oxalosis and hyperoxaluria community.

View Our Upcoming Events

Driving Research to Make a Difference

Learn More About Research

The path to end hyperoxaluria is a challenging one that requires a progressive research agenda to accelerate treatments and drug development. As the world’s largest private funder of hyperoxaluria research, OHF is dedicated to providing hope, energizing science, and helping save lives around the world.

About Us

OHF is a small, but mighty organization fighting globally to end hyperoxaluria forever. We tackle major barriers so that patients living with hyperoxaluria have brighter tomorrows. OHF puts patient first, working tirelessly to accelerate research, improve access and quality of care and empower those living with hyperoxaluria. We won’t stop until the cure is found.

Learn More About Our Team Contact Us

At the OHF we know that as small as the hyperoxalu At the OHF we know that as small as the hyperoxaluria community is, we are just as mighty! The OHF is working with The Center for Information and Study on Clinical Research Participation (CISCRP) to plan a virtual community advisory board of individuals affected by unknown (idiopathic) hyperoxaluria. This is an amazing opportunity for you to use your voice and make a difference in unknown hyperoxaluria. Your feedback will help guide researchers on the treatments and outcomes that would be the most meaningful, and on planning a future clinical trial. 

Email mayav@ohf.org to help shape what tomorrow looks like in idiopathic hyperoxaluria today.
Looking for a way to be a part of kidney stone res Looking for a way to be a part of kidney stone research? If you are a patient with kidney stones, a caregiver/advocate for someone with kidney stones, or a clinician who wants to change kidney stone care, join this research study from the Kidney Stone Engagement Core!

https://redcap.link/seya168k
Don't miss the early bird registration deadline of Don't miss the early bird registration deadline of February 1st for the 14th International Hyperoxaluria Workshop! Visit https://bit.ly/ohf_workshop to take part. 

  When: June 23-24, 2023
  Where: Sala dei Notari, Perugia, Italy
  Who: Clinicians, Researchers, Industry (This is a professional only event, but there is a patient meeting coming very soon!)

  This workshop will be the largest professional event for members of leading clinical, research, and industry teams in hyperoxaluria, who will convene to explore clinical advances, cultural trends, and current research outcomes that will inform future critical research and development.  Above all, we will work together to improve care for those facing the challenges of hyperoxaluria diseases.
Only 32 days until #RareDiseaseDay2023! Visit th Only 32 days until #RareDiseaseDay2023! 

Visit their website to download tools that will help YOU show your colours! From frames to filters, and backgrounds to banners, you'll find materials to raise awareness and help share your rare!

https://www.rarediseaseday.org/downloads/
The OHF Youth Executive Leadership Program can't w The OHF Youth Executive Leadership Program can't wait to connect this winter! We look forward to discussing exciting updates on topics including:

 - Updates on Y.E.L.P member projects
 - Rare Disease Week plans and attendance opportunities
 - A future, in-person, Y.E.L.P meeting
 - Leadership opportunities

Visit https://bit.ly/Winter_RSVP to take part, and click here to learn more about Y.E.L.P!
Updated Link and Details - 14th International Hype Updated Link and Details - 14th International Hyperoxaluria Workshop with Event Details!!!

Please make sure you check out this link to see all of the Details and to Register for the upcoming Workshop in Perugia. (Professional Workshop Only)  https://ohf.org/14th_international_workshop/ .

We look forward to seeing you there!!! Grazie!!!
2023 Patient & Family Workshop We're back! It's t 2023 Patient & Family Workshop

We're back! It's time for patients and families to meet again in-person. The next family workshop will be in the United States, but we need your feedback to help us plan!
Please take this short survey to help choose the best location!

https://ohf.org/patient-meeting-2023/

Looking forward to your feedback!

Sponsorship Opportunities Available, Contact Julie Bertarellu at Julieb@ohf.org
The OHF is excited to be hosting an in-person meet The OHF is excited to be hosting an in-person meeting this year! In order to plan the best event for all members of The OHF community, we are asking for feedback! Visit https://bit.ly/2023_meeting to share your thoughts!
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