Virtual
Calendar of Events
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World Rare Disease Day
This February 28 is Rare Disease Day. With so many things going on in the world around us, it’s very easy to put off important things like health...
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Harnessing the Power to Make a Difference!
Harnessing the Power to Make a Difference!
Hear stories from others in the rare disease space who despite their diagnosis recognized that they could make a difference. No one is more motivated than you to drive progress against your disease. Learn how to make a change and breakdown barriers. You can take the next step! Click to Register Speakers: Anthony DeVergillo Inclusive […]
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What’s Causing My Kidney Stones?
What’s Causing My Kidney Stones?
Kidney stones are common — if you haven’t had a kidney stone, you likely know someone who has. Hyperoxaluria, kidney stones in children and multiple kidneys stones as an adult are not. Learn from two OHF key opinion leaders about causes, symptoms, diagnosis and when to take a more in depth look. Click to Register […]