Living with a chronic condition places a daily emotional strain on both patients and caregivers, not to mention the newly added stress of a pandemic. Join us as we step […]
World Rare Disease Day
This February 28 is Rare Disease Day. With so many things going on in the world around us, it’s very easy to put off important things like health...
Harnessing the Power to Make a Difference!
Hear stories from others in the rare disease space who despite their diagnosis recognized that they could make a difference. No one is more motivated than you to drive progress […]
What’s Causing My Kidney Stones?
Kidney stones are common — if you haven’t had a kidney stone, you likely know someone who has. Hyperoxaluria, kidney stones in children and multiple kidneys stones as an adult […]
Apply to the Young Adult Representatives of RDLA (YARR) Leadership Academy
Apply through the Young Adult Representatives of RDLA (YARR) Leadership Academy The EveryLife Foundation for Rare Diseases is excited to offer the return of the YARR Leadership Academy, a series […]
YARR Summer Series Presents LinkedIn
Register through the Young Adult Summer Series: LinkedIn registration page. The final 2022 YARR Summer Series webinar will discuss how to navigate LinkedIn and career development as someone with a rare disease. Speakers TBA.
Virtual Access Webinar & Patient Workshop
The final event of Hyperoxaluria Awareness Week 2022, and this year our theme is “ACCESS” Our goal is to highlight the importance of being able to ACCESS the most up-to […]