Emotional Wellbeing

Living with a chronic condition places a daily emotional strain on both patients and caregivers, not to mention the newly added stress of a pandemic. Join us as we step […]

World Rare Disease Day

This February 28 is Rare Disease Day. With so many things going on in the world around us, it’s very easy to put off important things like health...

Harnessing the Power to Make a Difference!

Hear stories from others in the rare disease space who despite their diagnosis recognized that they could make a difference. No one is more motivated than you to drive progress […]

What’s Causing My Kidney Stones?

Kidney stones are common — if you haven’t had a kidney stone, you likely know someone who has. Hyperoxaluria, kidney stones in children and multiple kidneys stones as an adult are not. Learn from two OHF key opinion leaders about causes, symptoms, diagnosis and when to take a more in depth look. Click to Register […]