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OHF

Oxalosis & Hyperoxaluria Foundation

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July 14, 2022 - August 5, 2022

Apply to the Young Adult Representatives of RDLA (YARR) Leadership Academy

Apply through the Young Adult Representatives of RDLA (YARR) Leadership Academy The EveryLife Foundation for Rare Diseases is excited to offer the return of the YARR Leadership Academy, a series of on-line courses offered to a select group of young adults in the rare disease community (ages 18-30). Academy students will learn about the roles […]

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News From the OHF

Metabolic Support UK (MSUK) has shared the exciting news that Lumasiran (Oxlumo) has been approved in the UK for those living with PH1. We are grateful to the patients, families, and experts in the field that came together and shared their perspectives on PH!

“We would also like to extend our gratitude to the wonderful team at the [OHF] for their support and assistance in the engagement and insight work required for this appraisal.” —MSUK

International Workshop!