Tiffany was diagnosed with primary hyperoxaluria as an adult after years of unexplained kidney stones. In this short film, she shares what the day of her diagnosis felt like, how her family rallied around her, and why she chose to step forward as an advocate for the OHF community.
Read first-hand accounts from patients, parents, and caregivers around the world. Click any story to read the full piece.
Sharing your story is one of the most powerful ways to create change. When individuals and families speak openly about life with hyperoxaluria, those experiences build understanding, increase awareness of rare diseases, and remind the world that every diagnosis represents a person, a family, and a future worth fighting for.
Stories are featured on the OHF website and shared through our newsletter and social media, reaching audiences well beyond hyperoxaluria.
