Apply through the Young Adult Representatives of RDLA (YARR) Leadership Academy The EveryLife Foundation for Rare Diseases is excited to offer the return of the YARR Leadership Academy, a series of on-line courses offered to a select group of young adults in the rare disease community (ages 18-30). Academy students will learn about the roles […]

Register through the Young Adult Summer Series: LinkedIn registration page. The final 2022 YARR Summer Series webinar will discuss how to navigate LinkedIn and career development as someone with a rare disease. Speakers TBA.

The final event of Hyperoxaluria Awareness Week 2022, and this year our theme is “ACCESS” Our goal is to highlight the importance of being able to ACCESS the most up-to date hyperoxaluria information and care while spreading awareness for hyperoxaluria and connecting the community.

Participe en el XIV Taller Internacional sobre Hiperoxaluria, el mayor evento mundial dedicado a la hiperoxaluria, tanto para profesionales como para pacientes. El taller ofrece una oportunidad única para establecer contactos e intercambiar conocimientos de gran valor con todos los integrantes de la comunidad de la hiperoxaluria: pacientes, cuidadores, investigadores, médicos y representantes del sector. Las personas que viven con una enfermedad rara tienen derecho a alcanzar su máximo potencial de […]

Join patients, families, experts, researchers, and clinicians to connect, learn, and grow. Get ready for a day filled with inspiration, learning, and heartfelt connections. Renowned experts will share their wisdom, […]